Jesy Nelson has revealed that one of her baby daughters will have to undergo surgery to treat her scoliosis.
The former Little Mix singer announced in January that her twin daughters Ocean and Story had been diagnosed with spinal muscular atrophy (SMA) Type 1, a rare genetic condition that causes progressive muscle weakness.
In an emotional interview with The Daily Mail about her new documentary, Jesy, 35, revealed that Story has also been diagnosed with scoliosis, or the abnormal curvature of the spine, and would need frequent operations.
In addition, the 35-year-old divulged that both twins, now 14 months, will have surgery soon to change their feeding tubes.
“They’re having an operation soon because obviously they’re on feeding tubes and the girls basically keep pulling them out because they’re causing so much trauma to their nose and throat,” she shared.
“So they’ve now got to have an operation where the food goes into their tummy, because they can’t have this tube down their throat anymore because it’s causing so much trauma.”
As for Story, she added, “She’s got scoliosis and she’s going to have to eventually have an operation on her spine, and she’ll have to have that done every six months.”
Jesy, apologising for getting upset, explained that she wanted to make her new documentary, Life Changing, to give an insight into what their daily life looks like.
“I wish I could say, ‘Oh, it’s easier now,’ but it’s not. And that’s the really heartbreaking thing about this diagnosis. It’s not like, ‘Oh, they get their treatment and then it all goes away.’ It’s a never-ending, life-changing situation,” she stated.
Since her twins were diagnosed, the Boyz singer has been campaigning for newborn babies to be tested for SMA across the country.
Earlier this week, the government announced that all babies in England will be screened for SMA from birth, beginning later this year.
Jesy’s new documentary, Jesy Nelson: Life Changing, premiered on Prime Video on Friday.
