Jesy Nelson has shared that her twin babies are unlikely to ever walk.
The former Little Mix singer posted an emotional video to Instagram on Sunday, vowing that the girls will “fight all the odds” after a diagnosis of a rare genetic condition dubbed spinal muscular atrophy (SMA1).
SMA1 causes muscle weakness, progressive loss of movement and paralysis.
“We were told that they’re probably never going to be able to walk; they probably will never regain their neck strength, so they will be disabled, and so the best thing we can do right now is to get them treatment, and then just hope for the best,” she said.
Nelson and her fiancé, Zion Foster, prematurely welcomed their twins, Ocean Jade and Story Monroe Nelson-Foster, in May 2025.
The girls were diagnosed after four months of “gruelling” hospital appointments, and Nelson wants to raise awareness of the condition and the signs to look out for because “time is of the essence” with the disease.
“I just think that I can raise as much awareness about this as possible, and the signs, then, you know, something good has to come out of this,” said Nelson.
She added that the signs to look for were floppiness, an inability to hold themselves up without support, a “frog-like” positioning of the legs without much movement, and rapid breathing in the tummy.
She added: “If anyone is watching this video and they think they see these signs in their child, then please, please take your child to the doctor, to the hospital, because time is of the essence, and your child will need treatment. And the quicker you get this, the better their life will be.”
